I realized today that I never did post the final diagnosis on all of Emma Caroline's tests. After having CT scans, MRI, blood work and an upper GI she was diagnosed with Cyclical Vomiting Syndrome. I can't quite explain the range of emotions that went through me when I was told that. My first thought was "no duh". But that isn't nice to day to a doctor (right, Jonathan). I am, of course, so glad that it isn't something terrible. There are no tumors in the brain or tears in the stomach. But to go through all the pain, time and expense to find out that she just throws up from time to time is, well, a bit frustrating. But we got some new drugs and plan of attach for the next time it happens. If that doesn't help we will consider a daily medication. The best hope given is that this is not something rare and crazy. Our doctor treats other kids with this. Plus, she should grow out of it.
About the same time as all of these tests, EC had a new speech evaluation. That went really well. We have seen such improvement over the last year and she is doing really well in school. The speech therapist recommended 3 to 6 months of therapy just to "tweak a few things". But thinks that may be all she needs. We then had her parent teacher conference and it couldn't have gone better. All in all she is doing good and we are so happy to see her growing into such a sweet young lady. Thanks to everyone for your prayers and words of encouragement.
5 comments:
She looks like her mommy.
So happy that things are going so well with her. I rejoice with you.
So glad to hear!!! That is wonderful!!!--not the vomitting thing---however...wonderful that it will hopefully be grown out of as she gets older. The christmas parade time is coming up....NO ONE GET SICK!!!
We hugged and kissed her throught the TV, That is a beautiful grandaughter, but look where she came from. GeGe and DeDe
i always considered cyclic vomiting and oppositional defiant disorder (aka disobedient kid) to be classic "wastebasket" diagnoses. "we don't know why it is, but we'll just descibe it and call it a 'syndrome.'" i know it's frustrating, but it could have been a whole lot worse.
plus, she loves Jesus, is beautiful, and has fantastic parents. can't wait to get together with you guys!
Yeah God! Glad school is going well, too. I remember during the summer when the concern level was high-possible special needs interventions.
Hope your weekend goes well. Maybe tomorrow afternoon Emma Caroline could come over while Knox naps? THen YOU could nap, too, mommy-to-be.
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